Tuesday, January 31, 2017

Lessons I Learnt Today



I so do not want to write a blog right now . 
The only reason I am is because it is January 31 and there is a big sale on  blog books and my husband prints one every year for valentines and reminds me constantly that  my Jan 31 closing blog better be good and meaningful 

So I always listen to  what is asked of me . As usually I am the asker .

Secondly- there  is a lesson so big today that I have learnt - that as depressed as I am right now I know I have to write it down before it disappears 

My lesson ? Surrender . Surrender . Surrender . And accept that you don't have control over SHIT girl ( but ps thanks for 45 years of trying )
The only thing you have control over is you reaction , your perspective , what you do with its all and your grace .

No amount of wishing , praying and negotiating will change an outcome of what is . Your actions are extremely important and your choices -that is for certain -but in the end all you have control over is how gracefully you can accept what is or overcome it . And that choice ? Will never be taken away from you . You are the boss of your brain 

Today Beauty went for what we were almost positive was her last Shriners hospital appt . Sure she will have them yearly in her life but not the heart racing , sweat inducing sit on your chair type anymore . She was supposed to be out of brace 6 months ago and since grew 1.1mm (  you read right not cm .. mm ) she had to wear it for 6 more months . After 28, 300 hrs of wearing a brace - 6 months was an eternity for her 

But she did it .

And this was supposed to be just a routine check up to confirm no more growth - and to confirm brace off .

I knew the second I saw the surgeons face that this was not the case . She had stopped growing as predicated but her curve shot up to 43 degrees from 37 degrees which is completely unexpected at end of growth placing her in the .00001  percent of scoliosis curves that continue to progress at a rapid rate beyond end of growth and a case that will need to be closely monitored yearly for the rest of her life 

And of course - a possible candidate for spinal fusion surgery . A surgery we have done everything to avoid for three years and which was 6 months ago declared only a slight possibility will be back on the table for years to come as a possibility 

So there we go .
So no brace ? Excellent news ? 43 degrees and 5 degree worsening in 6 months end of growth ? Not so much .

Since Jan 9 2017 - the day I got back from a wonderful amazing relaxing cottage Xmas vacation my whole word has turned upside down . Without explaining it all lets just say that my husband has a critical health issue that we thought he was out of the woods of  and it not . It has been hard , dramatic , has taken every ounce of strength and energy out of both of us over the last three weeks to get through this . 
I will write about it one day . That is for sure as it is a massive part of who I am right now and what are family is going through .

And my mom found out 2 weeks ago that she is having a very important major surgery next week completely unrelated to any of her other massive  daily health issues . She will have a tumour removed from  her neck which will leave a huge scar and have very important risks which I don't want to write on this blog as my kids read it . Never mind that this all could increase her already daily post concussion  headaches and pain which she deals with daily for three plus years .
I will be taking care of her as her only child 

Today when we did not have the news we expected -I felt myself slither into a dark dark hole with what felt like no room to come up for air . I felt hopeless and helpless . Which I am .

I also heard a whisper far off in my head somewhere that asked  me to live the lesson vs just hearing it logically . That there is a lesson in life I need to learn and that today was the day I would fully fully learn it and embrace it's very inconvenient truth 

And it wasn't a whisper about just Beauty's situation .. It was a whisper about my marriage , my husband , my mothers bad health and upcoming surgery .It was a whisper about my life and everyone else's life around me. 

And it Said : 
Surrender to what it . 
Life will be the author of it's own story
Accepting it all is the only way 
Stop trying to fix it 
It is not yours to fix 
Faith is a great feeling-but not reality as we all know in our hearts
Bad things happen to good people
Surrender

I have always known this . I have come so far with this over so many years , one baby step at a time . Slowly but surely . But today I knew for sure - that life will happen as it wishes to play out . 

For everyone . And for me . 

I lost a lot of faith over the last few weeks . But I gained a lot of perspective and maturity .  I grew up more in these three weeks than I have in a lifetime.

Hopefully in  full surrender I will find full freedom too .