Wednesday, January 09, 2013

How ADHD is Occuring to Me (so far)



 One of my favorite word in the world is “occur”

I was taught it from one of the best transformations psychologists put on this earth from Legacy who I was lucky enough have teach me and transform me.

It’s the way to see that the way that things occur to me stem from my reality and experiences and is my perception which may have little or much to do with the way things occur to you or anyone else. I have used this as language over the last 3 yrs. and it has honestly altered my life.

Where are we at now? Chase was diagnosed 1 month ago with ADHD by a qualified neuropsychologist. We are now doing research, talking to many experienced people, meeting doctors, meeting with the school. All to answer the question: How do we get him the appropriate help? To use meds or not to use meds? Is this diagnosis real? What does it mean?

So below a snapshot in my other style of writing of what has occurred to me up until now. Such an important part of my life and his life to capture. An important part of our lives to remember and make real. To be vulnerable. To be who we are. To share. With you

Intense is the word that comes to mind when I describe my oldest son. Since forever. For forever. The moment he was born he captured and kept hearts. His cry was hungry, his hands were strong, and his needs were my needs immediately.

At 18 months my husband and I would often remark how we felt scared to wake up in the morning and go get our son from his crib. A weird thing for parents to remark right? Was he aggressive? Never! He was too happy for us. Too full of life for our tired bodies. His smiles were so wide, his laugh so loud, his eyes so sparkly that we were afraid that we could never meet up, meet up to his charisma, his intensity, his charm, his need for us.

He was always so much. And so much more. Our love for him was bigger than us, bigger than possibilities. We got over our fears and went to his room of course day after day after day and loved every single amazing moment. We went to bed at night still speaking of him. He captured us and still holds us captive. Her has our hearts and our souls every moment of every day.

What picture comes to mind over the years of him from 2-15 yrs.? A big gorgeous rare type of dog actually. Except that in reality he is a very small boy now teen actually and not a big dog. But his looks and his eyes have always been like the big dog that everyone comments about one the street. “The eyes! The hair! The perfect teeth! The tanned skin!” It’s been a whirlwind of attention, and compliments and fascination on lots of levels with this boy. Offers for modeling and possibly even movies. But the problem? His looks don’t match his heart. And introvert in many many ways although, looks the part of extrovert.

And that big beautiful dog at home? When you get home he jumps up and licks your face and wrestles you to the floor and loves the hell out of you. Then he steps on you and plays with you and licks your face some more, and more and more again. As he grows it changes…his loves comes about in other ways, his intensity shines through in other ways. Through interruption, through temper, through impulsivity during games or conversation. But like that loving companion he always was he always is and he always will be. He will love you so much, and need so much, and give so much and want so much-that often the feeling is that there is nothing left for yourself. Or your spouse. Or your other two children.

He commands that attention but he does not want it. And that is the catch 22.

So you spend your life trying to figure out ways to make it change without changing him. To come complete with capability, and worry less, and make room for other cells in your brain without him written all over them. You do all of the due diligence and discipline. You create routine and structure and walls to hold in the love and the energy. To make the home about everyone where everyone gets their turn. You devote your life and a good part of your career to the proper ”encadrement” and your ways are so effective and so good that you share it with many people and their lives change with their own kids ADHD or not.If it worked for him it will work for anyone.

You have perfected the discipline of parenting in many ways even though that is never possible. Your brain works 25 hrs. a day . For real.
And through it all never once do you really ask yourself “is this normal”? you become suspicious over the years when you cannot have a conversation with your other son in the kitchen and always have to move rooms if the older one is there, or when every family game turns into a fight, or when even with the best of studying and the mastery of knowledge a 38% can come back on a test. You still don’t ask yourself what is going on when you worry about his social life, and talk about only him to most people, when your blog was developed because of him, and any psychologist you have sought help from is because of him. You don’t ask yourself if this is normal when each time before bed and each time as you wake there is an issue to discuss about him, a worry to be had, or a feeling to be focused on. When you wake up in bed at night for 15 years you never think of anything else but him.

You have always attributed it to the way you love him. The intense way you love him. You have not never ever loved anything more in the world nor might you ever. You are connected to him in every way possible as he is to you.

And then one sentence in a book changes your life as it becomes clearer:
“Parents of kids with ADHD put a hundred times more effort and yield often one tenth of the results from their parenting”

And you think of you, and all those hours and years and moments and you cry, and cry and cry because you are starting to figure it all out. And you start realize that your whole life and your family life has been built around both the strengths and weaknesses of one person. That our home has been shaped by one person’s needs in many ways. And where does that leave the rest of us? Are we still there?

And then he comes to you at 14 yrs. and 11 months and tells you what you should have already known “I want to be tested for ADD…I need help Mom and Dad” And he goes through hours and hours and hours of tests and interviews and so do we ….and it becomes clear. Clear as day.
And like a puzzle you begin to build it. Put all the pieces together. Build the future together and the possibilities.

And weigh how much help you want or not want. And weigh if you want to change what has become or embrace what you already have. To trade sparkle and intensity for focus and concentration? Is that a good payoff? For whom?
And you weigh what he will gain and you will lose and that kills you to think about. Because you are not ready to let that big beautiful face licking puppy go are you now? You selfish bitch! It’s about him and not about you!

But this has become our live and I love our life and I am afraid to make changes to it.

I am afraid that he will change. And I am afraid the help we will give him will work. And he will grow up into the potential he has always had waiting for him. And it scares me to death it does. Or maybe the opposite and the medications will scare him and scare us, and make him depressed and sad. Or they won’t work at all and he will lose confidence and security?

And medication????????  Medicating my baby neurologically? Are you kidding me??? How did we get here?

And so I research and I share. And ADHD is a very lonely place to be, because often it is not believed ort noted as something important. Although it is very important. Some people around me make it very important and some people around me make it as though it is popping an Advil for a headache. And I get it totally. It seems like every 10th person has an attention issues right? Why not take a pill to succeed more sounds like a good idea?

And at the same time…I have felt so much support and I have felt powerful in being able to ask for it. Having the courage to ask for help, my biggest and brightest character flaw. Realizing once again who I can count on in our lives and who I cannot.

So this week is decision week it is. And I feel sacred and sad and lonely. So does Chase as he realizes what has happened and what is ahead. So we muddle through. And talk...and communicate. And I repeat over and over and over that I love him exactly the way he was and is and will always be. But it’s time for my puppy to get help and support that will make a difference. Not because we need it at home or we want to change things, or for him to get better marks or for him to change anything about the lovable guy he is…

But to face the future. And to get what he needs to enter the adult world in a few years with the tools that he needs in the proper places. To, look outside of our home and our world and into his world and his future.

The hardest part of parenthood. Will always be letting go and seeing them on their way. Giving them one suitcase and umbrella at a time.

Making one mistake at a time

Even though you know it is not only the right thing to do but your obligation as a parent. Giving up part of your comfort for theirs. And planning for their comfort to come. Preparing them to not only be comforted by you. But to be comforted by others and to eventually be the comforter too

Ready to take on the big and bad and beautiful world out there. Both with you and without you.

And that is how it is all occurring to me so far.

And how it occurs to me is the only thing I know for sure